Community
Beyond the Clinic
You're Invited
FD/MAS Alliance Community and Educational Programming
After sharing our 2025-2027 Strategic Plan, we’re asking for community feedback on our programs and outcomes for the path ahead. We’ll always be committed to our mission of advancing research, providing education, and channeling the voices of individuals and caregivers with Fibrous Dysplasia and McCune-Albright Syndrome. Now, we’d like to know how you see that mission playing out in our community and educational programs.
We hope you will share your feedback to amplify your experience and priorities.
Share Feedback on Community and Educational Programs here:
All questions are optional.
FD/MAS Alliance Monthly Community Meet-Up
Community Beyond the Clinic
This program is sponsored in part by Amgen through the #RAREis Global Advocate Grant program. This will help FD/MAS Alliance provide live webinars and online resources addressing mental health management with a focus on combating isolation for FD/MAS patients and caregivers.
"The Patient Advisory Council is proud to launch FD/MAS Alliance Monthly Community Meet-Ups to build support networks and address common challenges. Join us for the next six months for one or more Meet-Ups! All gatherings will start at 7:30 pm EST (11:30 pm GMT). Join us because you’re interested in our “focus topic” for the month, or simply to connect, listen, and share!"